What Do You Want to Know? Investigating the Information Requirements of Patient Supporters

There is a vast amount of data associated with any one patient. It is challenging for medical staff to understand all this data. It is even harder for a lay person, who may not even know what medical terms mean. The research project BabyTalk-Clan aims to create personalized summaries of data for a lay audience. It uses sensitive, highly-detailed clinical data relating to a patient. This includes medication given, test results, notes made by medical staff, and continuous physiological signals such as heart rate. We took a qualitative approach to knowledge acquisition for user requirements. Using interviews and a focus group within a Grounded Theory methodology, we established what information lay users want in these medical summaries, and the degree of summarization they require. Findings were cross-validated through a questionnaire.

• Type: Conference
• Year: 2008
• Where: CBMS
• Authors: Wendy Moncur, Judith Masthoff, Ehud Reiter
• Keywords: CBMS 2008, Continuous Physiological Signals, Lay Person, Medical Imaging, Medical Staff